Tag Archives: teenager

Off and Running

As I mentioned in my last post, May is Celiac Awareness Month and to see first-hand the challenges that my son, Cam, faces every day, I decided to go gluten-free for the month. Not only am I doing this to help him feel less isolated, I wanted to see how it affected me. Our house is probably 80% gluten-free anyway so I was curious to see if a complete absence of gluten made me feel any different.

So, on May 1, I went gluten-free. I weighed in that Friday morning at 193 pounds (this morning I was 191 but I attribute that to a little dehydration and typical weight fluctuation). I have to say, the first weekend of being gluten-free went great. Now, I need to be honest and admit that I was around a group of people that entire weekend who all follow a gluten-free diet so I had an advantage. We had many arranged and catered meals so the options were bountiful and allowed me to “ease” into my transition.

So, I was off and running. And when I say that, I mean it…literally. Ok, this may be TMI, but after three or four days on the diet, I started to get stomach issues. Bloating, discomfort, worse things. The thought crossed my mind that maybe eliminating gluten from my diet had set off some kind of odd, digestive chain-reaction with me on the complete opposite end of the spectrum than my son. I was the yin to his yang. Gluten made him sick, the lack of gluten made me sick. On my 3rd day of experiencing my “issues”, I began to wonder the validity of my thought. Turns out that I probably just had a stomach bug as the symptoms subsided and the remainder of week one went smoothly without further searching of “does my body require gluten” on Google.

As I pass day 8 of my journey, I feel good. I can’t say for certain or not that I feel any different than what I usually do but I certainly don’t feel worse. What has happened is that I have developed a new found appreciation for what Cam and millions of others who have to follow a gluten-free diet need to do to stay healthy. “Grabbing a quick lunch” is difficult. Eating at restaurants bring more of challenge. Instances such as almost reaching over and grabbing the remainder of a hamburger off of my daughter’s plate, resisting the temptation of taking a bite-size donut from the container that was sitting on my softball team’s bench, and not licking the beater of a Mother’s Day cake all require a good amount of discipline and extra thinking. Knowing that these are situations that my son faces every day and realizing that he is making these disciplinary decisions on his own makes me even more proud of him than ever. I’m 41 and I find myself cringing at the thought of eating another sandwich on a gluten-free bun after choosing to do this for a week. He’s 14 (in a couple of days) and he doesn’t voice any complaints when I pack him his 187th lunch of the school year because he has no other options and his body gives him no choice.

It’s humbling watching your kid exhibit intestinal fortitude at a level greater than you. It’s also extremely motivating. When that calendar flips in three weeks and Celiac Awareness Month is gone for another year, I may go back to my regular diet but I won’t stop in my advocacy for him. For what he does, it’s the least that I can do.

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The Exclusive Interview!

MysteryOK. The title was just to get your attention. Regardless, this post is done in an interview format and the person to which I’m asking these questions is very important to this blog. Exclusivity is what makes the title somewhat false. You see, the person I am interviewing for this post is gaining tremendous experience in answering questions about his condition and sharing what his Celiac life has become. He has been featured in other blog writer posts, did an interview with an international allergy magazine and has, believe it or not, appeared in a gluten free calendar. All by the age of 13. Of course, I’m talking about Cam.

I’ve “interviewed” Cam before, asking him about favorite foods and getting his feedback on his Celiac experiences, so I was hesitant to do another question/answer style of blog. But then I looked at the date; July 1st. Halfway into the year. Cam was diagnosed with Celiac in September 2013 but we did not begin to blog, tweet, share his story until January 1st. So, here we are six months later. It’s kind of like a half birthday / anniversary for us. Wow, in six months so much has changed. Instead of just our family reading about Cam’s every day life, hundreds of new people follow our story each month. As I mentioned, he’s been asked about his gluten experience in real interviews (not just silly things put together by his Dad). He has been approached by companies to try their sample products and give his opinions about them. He has embraced his condition, educates those who ask and has become a spokesperson for Celiac teens, whether he realizes it or not. Given all of these tremendous achievements, I felt it important that he have a chance to tell you how his summer is going; in his own words.

Celiac Teen Dad (CTD): How’s Your Summer Going?

Cam: It’s going pretty well…a lot better than last summer ’cause last summer I had all my Celiac attacks because I didn’t know I had my disease. It’s also better because I’m able to do more, such as camps and see my friends more often because I’m not having to stay near home as much.

CTD: Are there challenges you face in the summer time that maybe you don’t have to face during the school year? 

Cam: Well, I go out to eat a lot more so there’s the challenge of cross-contamination. Also, when we go places like the movie theaters, there’s always gluten or crumbs on the floor and the seats which I need to be careful about.

CTD: How about when you go to the pool with your friends? Any problems there?

Cam: I just don’t get any concessions. There’s always crumbs on the picnic tables and there’s the possibility of crumbs in the pool.

CTD: You shouldn’t drink pool water any way.

Cam: I know. (Said in a very “teenager” worthy tone)

CTD: Now, you play a lot of baseball and pick-up basketball in the summer. Has your Celiac Disease affected your play?

Cam: I don’t think so. It does affect things like when we go out to eat with the team after a game. I need to keep in mind the cross-contamination possibilities but it’s a lot of fun to hang out with your teammates.

CTD: Do your teammates treat you different since you’re not eating the same things that they are? 

Cam: My friends are very understanding of my situation because they ask questions and I let them know why I can’t do things. I’ll say, “I can’t have these wings because they’re breaded” or “I can’t have that pizza because it uses wheat flour”. If I tell them about it, they’re understanding and it doesn’t really matter. They help me out and know to be careful and not give me any gluten.

CTD: Anything exciting coming up the rest of the summer (only 7 weeks left until he starts school)?

Cam: Well, coming up at the end of July, I’m going to a gluten-free camp in North Carolina at Camp Kanata. They’re doing a special gluten free week with gluten free food. I’m real excited about it because it’s a nice overnight, week long camp where I can go swimming, play basketball and just have a good time and not worry about food.

CTD: Does it take some pressure off of you, knowing that for that whole week you’re not going to have to worry about what you are eating? 

Cam: Yeah, it takes a lot of weight off my shoulders knowing that it will be safe for me to eat there. I won’t completely let my guard down because you always have to be on the watch and there might be things like crumbs from the previous week’s camp that could cause some cross-contamination. But it’s going to be a lot easier knowing that everyone there understands my condition and wants to keep things safe.

CTD: Are you excited at the chance to meet other kids who might have Celiac Disease and/or gluten sensitivities?

Cam: Yeah, I really don’t know a lot of people who have Celiac Disease so I’m excited to meet some kids my age who have Celiac and share stories to see if they went through some of the same things that I did and find out what foods they like. It will be fun.

CTD: Ten months now since your diagnosis. Do you feel like you have adapted to the gluten free lifestyle. 

Cam: I feel I’ve adapted very well. I remember checking out all of the store bought brands and hoping that I could find something that I liked. And now, I know where to look for gluten and I know I have to be careful at restaurants. But my family supports me a lot; my mom cooks everything, my dad expresses my feelings in his blog. In 10 months, I would say that the Celiac lifestyle has become a lot easier.

 

 

Tough Times

I’m happy to report to all of you that my house is still standing. So far, a sinkhole has not appeared in the yard and swallowed all of our possessions. A black cloud does not seem to be following me around and each day the sun continues to rise. Without any of these dire consequences happening, we have officially made it through the first month of having a teenager in the house. You hear the stories of teenage angst and general disrespect towards authority figures brought on by a flood of raging hormones and it worries you as a parent. You ask yourself, “Is my kid going to be that way?” or “What’s my reaction going to be when he asks for a full back tattoo?” My mother used to tell my sister and I that she would move out of the house when I turned 13 and move back in when my sister turned 20. Yes, it was said in jest but when the time comes for your own child to hit the teenage years, you wonder if there was any seriousness to that statement and could it be an option for you should the world-ending scenarios come about.

Kidding aside, I think that teenagers get a bad rap. I think of all of the encounters with teenagers I have had over the past 10 years, be it babysitters, friend’s kids, store clerks or volunteer helpers and none have left me shaking my head and weeping for the future. I do feel though that the teenage years are probably the worst time for a kid to have a food allergy and/or auto-immune response such as Cam’s. Think about it. Kids who are under 10 are still generally under the wing of mom and dad when it comes to their food choices. Elementary schools go above and almost too far beyond when it comes to having allergy tables and regulations on snacks that are brought into classrooms for birthday parties, holidays, etc. This age group’s environment is mostly controlled. Past the teenage years, as an adult, you have had enough life experiences to make educated decisions regarding your food choices and your overall health. Restaurant staff and store workers will listen to you when you ask questions concerning your needs and not just give you a cold shoulder while thinking that you are a know-it-all punk trying to make their life harder. You have gained their respect by aging.

Teenagers are stuck in the middle. They are at the point where they deserve more independence but still need advice to help them navigate their way through every day life. You hope as a parent that they do the right thing but you want to keep your distance. They can be misjudged because of their age and their demographic, as a whole, is often viewed as that of a social pariah. For those on a special diet, this biased view can lead to trepidation and an overall lack of confidence when they need to start a conversation about their condition with an adult or a server that is unaware of their situation. They may lean towards making a bad decision just to avoid a confrontation that would fuel their feeling of inferiority. It can be even worse within their own friend groups. Their allergy or condition makes them feel different even if their friends show empathy. There are things that stick out to them that we, as adults, may not even see. Just this past Saturday, Cam pointed out things to me from his baseball doubleheader that my “untrained eye” didn’t catch. BBallHe talked about someone’s hot dog sitting next to his water bottle on the bench, the fruit he couldn’t eat because of the open bag of chips sitting on top of it, and the malt sodas that the other players had between games. It doesn’t bother him to tell his friends about his condition and to educate them rather than feel left out but, like I have said before, he has maturity and a grasp of his situation beyond his years. I think of those teens who may not have his resolve and how it would affect them if they were in the same situation. Would they have the nerve to ask their teammate to move their food away from theirs or be able to put up with the names and whispered comments when they turn down the offered Twizzler or soft pretzels? Some may be fine but others may make a decision that they will regret later just to avoid peer pressure.

Now, I didn’t write this in hopes that everyone who reads it will run out and hug a teenager. I didn’t sit here to devise a way to have my son included in everything for I feel that he needs to experience the small pains of not getting invited to a party and the first heartbreak of having someone make fun of you (I’m sure my wife disagrees with me). Those experiences, while painful in the present, build character for the future. So why did I write this? I did so just to say how proud I am of Cam. He strikes out and gets right back into that batter’s box the next time. He takes rejection and molds it into new avenues of friendships. He inspires me to want to make his future better. He is half of the equation as to why I am one of the luckiest Dads on the planet. The Celiac Disease and how he deals with it is just icing on my Father’s Day cake.